The Neurologist team came by around 10am and watched some of his twitching. They don't feel that they are the seizures that are going on but they decided they want to do another EEG today to make sure.
So far, all we know is that his brain was abnormally formed. Large cists developed early and where they developed on the brain, that part of the brain didn't develop. He also doesn't have a corpus callosum. They also said that the normal brain should be rippley, where Jetty's is smooth. Premature babies have smooth brains as they are still developing. The more rigid/rippley the brain is, the more sophisticated they are.
So Jamie and I have are going to have a lot of work to do with Jetty to teach Jetty's brain do what the missing parts would normally do.
Saturday, June 27, 2009
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3 comments:
Creg and Jamie-
Jetty has a fabulous and extensive support system of family and friends who will be there to help in any way. We love you.
I know we don't know either of you well but you 3 have been in our thoughts and prayers every day, all day. Whatever happens, and however things turn, you guys have already honored Jetty and his life immensely; with your dedication, your courage and love, and this blog. He has had the best already, regardless of how things go from here. You three remind us all that we only have this moment because the next one is unknown and who knows what it will bring. One minute at a time. We send you the best constantly, you are very loved. Lex Fry & Miles Barnard.
What ever is ahead I know you three will survive. Best Wishes today and everyday. We are praying for your family. Thank you for allowing us to be apart of Jetty's life everyday. God Bless
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