Jetty is getting used to looking at his Daddy! His eyes are starting to open.
The EEG results from this afternoon showed more seizures than the prior two EEGs. They decided to increase his dosage of Keppra and decrease the dosage of Phenobarbitol to see what that does.
Mommy and Daddy went down to Fells Point today for lunch since Jetty was getting an EEG which takes hours. They ate sushi and it was really good. They are packing lunch tomorrow because they are planning on being here all day since Jetty is finally awake. Hopefully they will be able to work with Jetty on eating from a bottle or a booby and not a tube!
Good night!
25 comments:
Look at that little fella!! He is so so cute!! We think about you all the time. Love you guys!!
Another miracle! His eyes are opened. What a wonderful surprise. Like you said, "slow and steady". We'll take them one at a time until you can take him home. Love you guys. Glad to hear you got out for a little while. You deserve a break! Give that beautiful baby of yours a big hug and lots of kisses from Aunt Sharon & Uncle Ted. xoxoxoxoxoxoxo
He is amazing and making such progress! I am always checking to see what you guys are up to. Please let us know if there is ANYTHING you need, we live right down the road 443-248-6165. Hand in there!
Chris and Stacey (Davis) Smith
Well hello Jetty!! So nice to see those beautiful eyes!! Keep the surprises coming little one!!
Wow, it's so great to see his eyes open. We continue to think about you and tell Julia all about her little friend Jetty!! Love Gillian and Matt
So happy to see Jetty open his eyes! What a beautiful baby...
thinking of you all...
Chief and Mrs. H.
Look at those beautiful little peepers! Daddy and Mommy needed to see your eyes. You are more than just a little adored! Now the assignment for today is drink a little milk, the old fashioned way!
Love Doc and Retha
Horray!!Hello Jetty!!
Hi Jetty! Everyone has been waiting to see those beautiful eyes of yours, especially your Mommy & Daddy. You have felt all of the love around you, and now you can see the faces of those who love you. You have quite the fan club little guy! Love, Lesley
Hey, Jetty-Baby! Love seeing those eyes opened! You are adorable!
He is so cute. I hope the new dosages work. Thank you for always keeping us in the loop. You are so important to us. We love you.
Stacey and Boys.
Hi Jetty! It's a beautiful day for you to spend some quality time with mom & dad! Thinking of you three often - Megan & Casey
Wow!Look at him opening his eyes! That is so exciting. I hope today goes well, you are in our thoughts back here in Chestertown. Just keep truckin along, everyday is getting better. What great news this Sunday morning. Love, Will, Tara, Hill, & Carson
Congratulations Jetty! You have beautiful eyes. Jamie and Creg you guys are amazing. I can't imagine the roller coaster ride that you have been on. Stay strong. Our thoughts are with you. -Sara (Clark) St. Jean, Mike and baby St. Jean (coming soon).
Goosebumps at this great news!
Hello hello hello lil fella!! That was a long nap!! We are so happy to see your pretty eyes. Keep up the good work!!
xo
Whitney and Amos
Hi Jetty! We are so excited to see your beautiful eyes! Daddy is a little scary looking, but he's a great guy! Just focus on mommy :) We love you three and miss you so much!!! Love you, Al, Brad and Girls
Hi Jetty. Glad you let Mom and Dad out for a bit yesterday. They need some "date time." Hope your Sunday is full of little blessings. We are thinking of you and believe that your name will pull you through and make us all stronger.
Rick and Sara G
Hey Jetty, Your eyes are so pretty. It is so nice to see them open. Glad you have finally decided that daddy is not so bad to look at. Jon and I are still sending our prayers and love to everyone. Creg and Jamie glad that you two are getting out for a min, for some you time. Hope that this day brings some good news with the bottle or the booby, we will look forward to hearing all about it.
love always Emily and Jon
Well GOOD MORNING, Mr. Jetty! Love checking the blog and seeing good news! Absolutly precious. We have our fingers crossed about the new dosages. Much love- Erin & Karl
Each milestone puts Jetty one step closer to coming home!! What a cutey-pie....Was so glad to hear that you two got a "little" break. Keep your faith...xoxo Wendy, Steve and kids
Jamie, Creg, and baby Jetty,
Hey guys! Baby Jetty is so stinkin adorable. You all are in my prayers. Me and my mom (JoAnn) have been following your blog everyday. Every one at Walgreens has been thinking about you too. If you need anything, you know where to find me.
Love ya,
Megan (Walgreens in RH)
Hey Jetty!! Great to see your progress, thanks for letting us follow along with you. We can't wait to meet you when you come home. Keep up the good work kid!
Lots of love from the Wilson clan
Hey guy just like I said there's that next ray of sunshine, keep um comin little angel!!!!!
Oh jetty you have the most precious eyes!! I am so happy that you decided to open them up and share them with us! I love you so much and haven't even gotten the chance to meet you yet but I can't wait! Hang in there and stay strong little fella! All my love -Erin W
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