Friday, June 26, 2009

The neurologist said that Jetty's brain "issues" are not characterized by any known genetic syndrome. That is good news and bad. It is good because we still don't know his future abilities. It is bad because we have nothing to compare him to.

18 comments:

Anonymous said...

One of a kind...he is proving how special he is!

Anonymous said...

Thank you for keeping us updated -- and with humor -- no matter what news you have. Creg should become a writer!!! Take the good news and go with it! Jetty is going to bring you such happiness and joy with any abilities he will or won't have. We sending 'no more seizures' prayers upstairs.. xoxo the griebs

Anonymous said...

Hey! Keep positive thoughts, everyone here is wishing you all the best!! He is so Daggone Cute! Hill says he loves the hiccups!! We have listened to it 20 times!! Sweet Dreams! Love, Will, Tara , Hill, & Carson

Anonymous said...

Congrats on your new baby! There is no greater gift which I'm sure you know by now. I look on here everyday for your updates!! My thoughts and prayers are with all three of you.
Jenna Startt

Anonymous said...

Jetty is such a handsome little boy. We love the hair! Our thoughts and prayers are with you all. We'll be keeping a close eye on the blog.
Love you all. Amy and Caren

Anonymous said...

Jetty is so adorable. Just wanted to let you know my thoughts are with you guys and that I look so forward to the updates and new pictures.

Tanya

Anonymous said...

By far the most precious baby on this earth. Creg your blog is fantastic. I live in Baltimore and at the drop of a hat you guys are welcome to put relatives up at my place, I can shuttle people for you, bring you food, visit, whatever you need/want. Just say the word-happy to do it. You're in the best hospital you could ask for and they are gonna get little Jetty up and running-like your blog says "slow and steady wins the race" for sure!
our thoughts and prayers are with little Jetty and hope you can bring him home safe and sound soon.

Erin (Gillin), Chip and Olivia Merrick

EvilChime said...

Having nothing with which to compare him can be very good... you won't be looking for a scripted outcome ... he'll be his own boy and progress at the pace that's right for him, and you won't be looking for something that's not on his personal agenda ;).

He's a darling . . . hang in there and thanks for all the updates!

Love, Uncle Rob and Donna

Joan said...

This is a good thing. It keeps more doors open, and lots of windows with light shining through them!
Aunt Joan

Aunt Debbie said...

Creg and Jamie- Jetty is going to make his own way with the help of all of us- You will tap into his strengths and build upon that. Keep thinking positive and load him up with love- He will amaze you!

Unknown said...

hey guys....he is really pretty we can not wait to meet him. Jon and I are just sitting her thinking of the three of you and your family, as we have done since we heard the news. He is getting stronger as the days go on, you can see it in the pictures.
It is so nice to have this blog to look in on. Thank you for the opportunity to share in this time of happiness as you all welcome your new baby into the world and to do it with such flare(Great writing)
Jon and I are keeping everyone in our prayers and sending good thoughts your way.
Keep up the good work mommy and daddy!!!
With Love
Emily Gerstmyer and Jon Uyttewaal

Anonymous said...

We love all of you! No matter what Jetty is going to soar through life! "Slow and steady does win the race"!!! There is a lot of love out here for him and the two of you. You guys are really amazing and that's what keeps Jetty improving.
Lots of Love,
Angela and Brad

Reyna said...

You and Jetty are constantly in my prayers. I found this blog that has some info that you may find support and encouragement from:

http://agenesiscorpuscallosum.blogspot.com/

It may at least make you feel not so alone, I was surprised how many blogs are out there by parents of kids with ACC.....

I see these pictures and read these posts and see such a lucky boy surrounded by so much love! Your humor is heartwarming, as someone above said, Creg, you have a real talent in your writings!

Jeni

Anonymous said...

Stay strong guys. I know it seems hard at times but just remember the human spirit is stronger than anything that can happen to it. Christian, Hayden, and I pray for you everynight. We are all pulling for you. Amanda

Anonymous said...

Creg, you will HAVE to start a column in the "Snooze." Your wonderful updates display the love you have for your family. Keep on going Jetty! We hear through Megan that he was grabbing at Jamie's finger.

Holly and Dave Bramble

Unknown said...

Jetty is such a little Angle! We love you! Aunt Al, Uncle Brad Mookie and Demon :)

Anonymous said...

What a lovely little man you have. Jamie and Creg I think of you three every single day and what a beautiful family you make. Keep positive and we hope to see you three home soon. Love, Billy,Sandy,Savannah and Olivia Miles

Sheila said...

Hey guys- remember that infants/kids are tough little buggers and are capable of bouncing back from some big health insults.

With each picture, he's looking stronger and interacting more with his world...GO JETTY!!!

He's gonna be a rugger like his grandpa Lawnmower!