Jetty gets weighed every Friday by Hospice and he was 15 lbs 12 oz at his yesterday's weigh-in. No where near the normal weight of a child his age but he is not a normal child. He was 19lbs in May before we put him on the Ketogenic diet.

Ativan is a drug we give Jetty when he has severe seizures that don't stop on their own. The drug pretty much shuts down all brain activity and he falls a sleep for a long period of time. Before Ketogenic Diet, we were giving him Ativan about once every two weeks on average. After starting the diet on May 2nd, we saw a dramatic improvement with his seizures. We had to give Jetty Ativan about once every 1-2 months on average. We wish that were the case today. The past month has been pretty rough for Jetty. We have had to give him Ativan every day for the past 9 days.

It looks like we may have to take him off the diet.