Jetty has a little sister!

It may look like a smile to Mommy and Daddy but really I just tooted.

I sure hope my baby sister, Olive, is going to help me fend off Clay! Clay is very sneaky... he sometimes likes to give me a gentle hug, then out of the blue... bam!... a smack in the face!

Jetty is almost 30 months old and doing great. His daily seizure count is down and he seems to be very comfortable. We had to move his bedroom upstairs to make room for his new little sister. He seems to like his new bedroom because he is sleeping more at night than ever before!

He is now 25 lbs which is the most he has ever weighed.

jetty has had severe seizures the past week and after days of trying to figure out why, we decided to get him checked for kidney stones due to his calcium levels. chester river did an ultrasound and found he has kidney stones and gullstones!!!

so we gave him some morphine which helped with the pain brought him over to the hopkins er. so here we are, waiting for the plan. the goodnews is jetty is finally calm (morphine) and sleeping for the first time in 3 days! i also want to apologize that my blackberry will not let me use capital letters???

Jetty turns TWO!

Jetty relaxing with his Aunt Debbie!

Two years ago, we dealt with one of the hardest moments of our lives... despite the poor prognosis that he was given, Jetty is still here and fighting. I have never been so proud of him. He is an inspiration to us every day.and we are truely honored to have such a son as well as the family that came to celebrate the day with us.

Surrounded by family and presents!

Taking a nap so that I have enough energy to open all of these gifts!

23 months old

Jetty's Occupational Therapist and Physical Therapist help Joe from Chesapeake Rehab Equipment measure Jetty for his new custom wheel chair being ordered. We are expecting it to be delivered in 120 days.

Recent Jetty Pictures...

If you mess with my covers one more time, you're going to find yourself on the floor!

Grandpa thinks I'm being all cute and cudily... little does he know I have a load in my pants!

Jetty had a Neuro checkup yesterday at JHU. They could not believe how well he was doing and the fact he was now 23lbs. His last visit was in October (4 months stretch!!!) and we have not changed his seizure meds since. The Neurologist told us yesterday that he will have his "ups" and "downs" and to enjoy his "ups" when he is doing well, and fight through his "downs" during the bad times...easier said than done!

We are looking forward to warmer weather and getting him out of the house. We plan to spend lots of time on the boat and in the pool this summer. Other than that... he is gaining weight, cutting teeth (slowly and painfully), fighting colds, and being cute and cudily.

All's well on the home front!

Jetty gets very exhausted dealing with his little brother!

WOW.... I am now 2 months behind!

Below are some pictures that I have on just one of our three cameras. So I promise to upload more tonight!
Jetty has been doing considerably well. His seizures are currently stable, no ER visits since September (when they flew him to Hopkins)!
Currently, he is dealing with a bad Cold and also two molars coming in. His reflux is bad right now as well... but we will take these problems any day compared to others he has had. He is growing (slowly) but atleast his weight is going up and not down.

His new brother really likes to keep a close eye on him.

Jetty got a nice warm hat for Christmas!

Santa came to visit the boys... Jetty never woke up for it and Clay kept eating his beard.

I promissed you a Thanksgiving picture of Jetty eating some pumpkin pie.... here it is!