Jetty had a pretty good Thanksgiving. He spent it with a lot of family and friends.
His seizures are steady but under control for the most part. He is almost 11 lbs and is still gaining and losing weight so that is our current challenge.
December is full of appointments (GI at Hopkins, Neuro at Hopkins, and several pediatrician appointments for his RSV vaccine and other standard check-ups). His weekly visitors are Physical Therapists, Occupational Therapists, Cranial Sacral Therapist and Hospice. Jetty has a nurse stay with him during the week and another nurse who comes 4 nights a week. That has been a big help.
Every day is different with Jetty and we are thankful for having such a strong and amazing Son.
