The spring winter was nice but Spring was a different story. I once again got flown to Hopkins due to Pneumonia and Pulmonary Edema. I was there for almost all of April and it looked like I was a gonner. But what they didn't realize is that all I needed was to get out of that place! How do you expect someone to get better when they constantly probe you?
Shortly after returning home, I was baptized at Mee-Ma and Bobbob's house in front of tons of family. A couple months later I turned 3!
Throughout the summer, my respiratory issues were the main concern for mommy and daddy as i seem to like fluid in my airways. I get weekly visits from my ladies... Diane, my Hospice Nurse, and Kerry and Kim, my OT and PT ladies from Infants and Toddlers.
I still have Nurse Melissa who takes care of me during the week days and I have new night nurses in my life... Barbara, Pam and Terri. They all take wonderful care of me!
Clay is starting to help me out at times without causing much pain. He runs to me with a cloth when he hears me cough to catch any slobber that might come up. (Daddy won't let him work the suction machine, which he has tried). He also is good at alerting them if I am in distress. I think he is going to be a great little brother who will have my back. Its a bit too early to figure Olive out.
Thanksgiving was great and so was Christmas. I received several wonderful outfits and a nice warm scarf that can go in the microwave!
My seizures are different every day. My breathing is awful and from what we've learned, is always going to be a struggle. However, I have not had to use the Bpap machine since I've been home from the hospital! Daddy actually returned it to the company just last week. I was so happy because I would get chills everytime I saw it sitting in the corner of my room. I hav a scar on my nose from that blasted thing.
So with all the chaos that goes on in my house with a typical family of 5, nurses, Barney, etc.... there is no place like HOME!
Thanks for all who followed me through 2012 and bring on 2013!!!!
