Jetty had a GREAT Christmas and was spoiled with gifts. He had asked Santa for some much needed button down clothing (easy access for his tube) as well as outfits without feet because he is getting too long! He must have been a good boy because he got lots! And most of them are camo so he is extra excited.

He had to get one more bad day in before 2010 and waited until New Years Eve. But he felt much better on New Years Day. A fresh start for a new year!

Jetty is now 13 lbs and is tolerating his food. GI at Hopkins has an appointment for him on 1/4/10 to check his weight gain to determine if they need to go in and put a j-tube in him which will allow the food to bypass his stomach and go straight to his small intestines. Hopefully they will be pleased with his weight gain. (2 lbs in 2 weeks)

We have learned a lot about ourselves in 2009... our strengths, our weaknesses, our ability to handle stress without having a melt-down... and most importantly, when we find ourselves fretting about normal, everyday drama... we look down at Jetty and remember not to sweat the small stuff. He is lucky everyday he is here and we are even luckier that he is. He hasn't been given the same chance at life as the rest of us and for that... "we don't sweat the small stuff".

Thank you to all of you who continue to follow our story and send us your love and support. We are fortunate to have such wonderful family and friends, both local and far.
Happy New Year and Good Riddance 2009!

Christmas with Jetty

A new sign for Jetty's room.

Aunt Lauren can't get enough of her nephew.

Aunt Leslie came all the way from Ohio just to see me!

My Great-Grandmother "GG"

I' going to give you 10 seconds to take this dumb hat off my head.

Christmas morning at Fleets and Grandma Fleets's house.

I feel like a stupid elf.