Jetty had a bad day yesterday. He started having trouble breathing around lunch time. His face turned white and his lips turned blue. We rushed him to the ER where his heart rate was 20. The ER team at Chester River stablized Jetty and did a wonderful job. They got his heart rate back up and sedated him. The only thing I didn't like was when they drilled a needle into his shin bone which was tough to stomach. Jamie said it wasn't a big deal so I guess I'm ok with it now. I am not sure but i think it was a DeWalt compact drill. According to Jamie, that procedure is called a intraosseous and basically it is a way to get a quick IV hookup. They then called Hopkins and Hopkins sent their medivac transport team for him. We flew over and he is now in the Pediatric ICU. He is currently heavily sedated and on a ventilator. Why did he stop breathing??? They have ruled out aspiration and feel that the cause is either one of two reasons. First reason may be that his seizures have evolved to where they now effect his ability to breathe on his own. Hopefully this is not the reason! Possibility # 2- His ammonia level in his blood was super high. This can have multiple effects on the human body. The elevated ammonia level and LFT's are a result of his liver not being able to handle the high toxicity of his seizure meds.

They now have taken him off of all of his seizure meds except for phenobarbital. They are flushing his system to remove the ammonia. We are waiting to hear about the catscan results as well as results from many other tests that were done over night.

Hopefully when it is time to go, they will take us back by helicopter too! Jetty was asleep for the ride over.