Saturday, September 4, 2010
Back Home!
All the doctors were very impressed with Jetty on Wednesday when he showed them that he could breathe just fine without the help of the ventilator. I don't think anyone expected him to come around that fast! With Jetty breathing well on his own and the ammonia blood levels coming down to almost normal they decided on Thursday he no longer needed to be in ICU and was moved to a regular floor. This made Mommy and Daddy very happy and even happier yesterday when they said he could go home. However....the fact that two of Jetty's seizures medicines have been taken away and the ketogenic diet being temporarily on hold, has caused his seizures to be worse and pretty much constant. For the next few days Jetty is to be given Ativan (the medicine that makes him sleep) around the clock to keep his seizures under control while the ketogenic diet is restarted and has time to take effect. So for now, Jetty will sleep and catch up on some much needed rest and hope that when we stop the ativan the diet will work again.
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6 comments:
I just checked in to see what was going on in Jetty Land and I'm so upset to read about what happened! And sooo happy that he is back home safe and sound. I know you guys have tons of support, but if there is ANYTHING that I can do, please let me know. PLEASE hug and kiss Jetty an extra time for me. Keeping you ALL in my thoughts and prayers.
I just checked in to see what was going on in Jetty Land and I'm so upset to read about what happened! And sooo happy that he is back home safe and sound. I know you guys have tons of support, but if there is ANYTHING that I can do, please let me know. PLEASE hug and kiss Jetty an extra time for me. Keeping you ALL in my thoughts and prayers.
Glad he's home, and catching up on much needed rest but I have to wonder when Mommy and Daddy will have that same opportunity! hang in there, I know how hard it must be to see him so . . . hugs from us!!!
Rob and Donna
Woo Hoo! Way to go Jetty!! And what a great birthday gift for you, Creg! Glad to hear that things are moving in a positive direction. You are, as always, in our thoughts and prayers. Love you guys!!
Sue & Thom
What a fighter your little man is! He is amazing.....and so are you two. I think he knows how loved he truly is and that's what must give him his strength! We're thinking of you and hope Jetty gets back into a routine, so you two can as well! Hope you feel the love coming your way!....oh, and are you still walking with Mom and Barney, Jamie? It was great to see you! Love, Kathy & Ken.
Thinking and praying for you guys! So glad Jetty is back home, resting....I hope you two get some rest too!
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