Above is a picture of me and MommomToday has not been a good day for us. The neurologists came in this morning announcing that the EEG results was the worse one yet. They feel that Jetty is suffering from the Ohtahara Syndrome which was caused by the cysts on his brain. This syndrome, along with having no corpus collusom, has just made this road much longer.
17 comments:
Jetty has the best parents and family in the world! Your network of friends are the greatest ever! And we will all be here for you no matter what! Love you, Al
Ditto.
Breathe in breathe out. We're all loving you no matter what. Lex & Miles
WE love you guys so much. We are praying hard, hopefully these will get answered. There is alot of love out there to help you all get through this.
Please let me know if you need anything from us.
We think about you ever minute of the day!
Love
Erin and Erich
Jetty, you have the bravest and most wonderful parents! We are all praying for you.
Just breathe -- and we are all with you.... Believe and have faith.
Love ~
Doc and Retha
keep up the hard work Jetty! We will all be hear for you and your loving parents. More prayers and love are being sent.
Love Always Emily and Jon
Creg, Jamie, and Jetty,
No matter how long and rough the road becomes you have each and everyone of us to travel it with you. We love you and are praying for you everyday. Jetty is so handsome and so strong.
Love
Erica, Lance and Carter Young
well said Erica.
Chestertown Kisses being sent your way.
Love from the Rickers! You have a great following. Thanks so much for sharing with us. You two are inspirational. And Jetty is amazing! absolutely beautiful!
Dear Little Jetty,
I was talking to my Nonna...and just wanted to tell you that you have people all the way in Italy praying for you. And they really know how to pray there! Can't wait to meet you!
Love,
Little Lizzy Assante
Dear Little Jetty,
Hope you get better!
we will pray alot more to help you get through.
Ok, baby Jetty, OHIO is pulling for you even harder than before!! The road may be long, but nothing ever worth having comes easily. You will overcome all the obstacles thrown at you because you are a Fleetwood and a Larrimore and that is an unbeatable combination. Lots of love, kisses, and prayers from your Ohio family...cousin Susie and Thom
I laugh and cry everytime I read this blog. Special people are given
special children. He is one loved little baby,and very photogenic
Thinking of you,
Beverly and Tink Blakeney
Jetty, you look so happy for your Mom Mom to be holding you! I see that little smile.
~Sarah~
I am so amazed by how strong the three of you are. I pray everyday that today is the day that you will hear good news. I love the three of you so much. I know this is so difficult for you but try to remember to take it one moment at a time. All my love and hugs & kisses- Erin W.
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