The spring winter was nice but Spring was a different story. I once again got flown to Hopkins due to Pneumonia and Pulmonary Edema. I was there for almost all of April and it looked like I was a gonner. But what they didn't realize is that all I needed was to get out of that place! How do you expect someone to get better when they constantly probe you?
Shortly after returning home, I was baptized at Mee-Ma and Bobbob's house in front of tons of family. A couple months later I turned 3!
Throughout the summer, my respiratory issues were the main concern for mommy and daddy as i seem to like fluid in my airways. I get weekly visits from my ladies... Diane, my Hospice Nurse, and Kerry and Kim, my OT and PT ladies from Infants and Toddlers.
I still have Nurse Melissa who takes care of me during the week days and I have new night nurses in my life... Barbara, Pam and Terri. They all take wonderful care of me!
Clay is starting to help me out at times without causing much pain. He runs to me with a cloth when he hears me cough to catch any slobber that might come up. (Daddy won't let him work the suction machine, which he has tried). He also is good at alerting them if I am in distress. I think he is going to be a great little brother who will have my back. Its a bit too early to figure Olive out.
Thanksgiving was great and so was Christmas. I received several wonderful outfits and a nice warm scarf that can go in the microwave!
My seizures are different every day. My breathing is awful and from what we've learned, is always going to be a struggle. However, I have not had to use the Bpap machine since I've been home from the hospital! Daddy actually returned it to the company just last week. I was so happy because I would get chills everytime I saw it sitting in the corner of my room. I hav a scar on my nose from that blasted thing.
So with all the chaos that goes on in my house with a typical family of 5, nurses, Barney, etc.... there is no place like HOME!
Thanks for all who followed me through 2012 and bring on 2013!!!!
6 comments:
Happy New Year Jetty, to you and your family... I hope that 2013 brings many good things for you. I continue to think about you and I check your blog almost every day to see how you are doing. Hang in there, little guy! You are doing great!
Much love,
Becky Bozarth
What a 2012? Happy New Year and watch out for those sneak attacks from Olive. Its good to have a lil brother to look over big Bro. Praying for all of you that you will have a blessed New Year.
WTG Jetty! You keep showing them how much of a fighter you are :) you are an inspiration to all. You have wonderful, loving parents and great siblings. I am in awe of you and I am a special needs mother myself. Happy New Year sweetheart and to your family....may you all have a safe happy one and one filled with NEW WONDERFUL things to come. With much love,
Marlana
From time to time, I've been checking in on all of you. Thanks so much for keeping up this blog and sharing your lives.
For this year, I wish you that you all know love, joy, wonder and wisdom in this life just as it is.
Peace,
Larissa Kitenko
Happy New Year Jetty and family. Love the pictures. You are getting so big. Take care. Prayers coming to you for a great 2013. Hugs
Penny
Sending you lots of love, Jetty!!!! Wish we could come see you, but there's so many germs I'm too scared :( Hugs and kisses from Jay Jay, Karim, and I!!!
Love you,
Kari
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