Tuesday, November 23, 2010

Since it has been so long since my last update, I better fill you in on everything....

Jetty is now 17 months old and is still as strong as ever. He is off of the ketogenic diet which has made things easier on us. His medicines are easier to give him and we can do oral stimulation with fruits and other sweet foods. He is not eating through his mouth but every now and then he will react to the taste.

His seizures are different everyday... some days he has one every couple minutes, some days he has one every hour. But they have been short and comes out of them on his own.

He has been gaining weight here recently which is a relief! He was 18lbs last week which is a huge improvement. He is cutting teeth which is miserable and causes him to have more seizures but he is handling it well.

He still doesn't smile or express emotion but he does let out a big yawn and some strong stretches from time to time which gives us a chuckle.

I am not sure if he likes having a little brother yet, as Clay seems to absorb all of Mommy's attention. But he has his Daddy there spoiling him constantly.

We are much more excited for Thanksgiving this year. Jetty is going to get some mashed potatoes and pumpkin pie put in his mouth. I'll be sure to take a picture of it for you!





Jetty had a procedure done at Hopkins back in October. They scoped his stomach to see if he had any issues going on in there which may be causing him pain. They found nothing out of the ordinary except some redness and inflamation caused by his medicines. We started him on some more antiacid drugs.

This is how Jetty and Clay get to their grandparent's house. Grandma doesn't like it.











Nurse Melissa bought Jetty and Clay matching pirate outfits.





I fall asleep on daddy everynight while he watches tv. If he's not here, I don't sleep.























8 comments:

Anonymous said...

Go Jetty, enjoy your Thanksgiving feast! Great pictures, I love the one of the boys on the four-wheeler! Happy Holidays to you all!

Mary V

Kari Oulahyane said...

Jetty's just as gorgeous as always! And Clay's a cutie, too :)

Happy Thanksgiving to you all...
Kari

Aunt Leslie said...

Love your pictures of the boys and the update on Jetty. Miss all of you. Happy Thanksgiving!

Sue Cross said...

Thanks for the update! The pictures are terrific, as usual. Such handsome boys. Enjoy your thanksgiving. Looking forward to seeing how Jetty likes his feast! Miss you guys!

Anonymous said...

I love the pictures what a beautiful family. Have a Happy Thanksgiving!

Lots of hugs, Lois

Anonymous said...

Enjoyed the update, love the pix of the pirates and the boys on the quad! I can only imagine the fussing my mom would've done, so I laughed at the grandma comment! Glad the family is doing well, God bless. Jeni

shelley hillyer said...

What beautiful pictures. Typical Kent County photo with boys and a four wheeler. Keep up the great work!

Anonymous said...

Great to see you over Thanksgiving Jetty! Hope you enjoyed your first taste of Pumpkin pie!!
-Katie and Mark