HAPPY BIRTHDAY!
I asked Jetty this morning what he wanted for his birthday. He said that he wanted me to update his blog for all of his fans.
We have never been so excited to celebrate a birthday. It is hard to believe that a year ago today we were rushing to Johns Hopkins, terrified and scared for our unborn child.
Day after day we were given unbearable news and reports from our Doctors. They felt they needed to prepare us for the worst which took years off our lives.
Although his outlook on life is still not good, he has passed every timeline he was given.
From needles to eeg's, tubes to probes, surgeries to diets, Jetty has been through so much in just one year that it all seems like a blur. (kind of)
We can not be any more proud of our son. He is the strongest and sweetest boy alive and we enjoy every moment.
Thank you to all of you for helping us make it through this past year. We are very fortunate to have such wonderful friends!
This picture was taken this morning. He is off to a good start on his birthday!
I'm just going to relax today and wait for the gifts and cake!
Daddy's sunburnt skin is like sleeping on freshly washed sheets just out of the dryer.
Mommy's new shapes are starting to get comfortable.
Johnny-Jump-Up is more like Johnny-Hang-There. Pretty disappointed with this thing.
My new ride!
The harnesses are too big for me so they put my carseat in here. Now I look stupid riding down the road in my new ride with my feet sticking out.
For a quick health update: Jetty is now 17.5lbs on his first birthday. He is currently cutting teeth which is causing him serious pain. He tends to have more seizures when he is in pain or discomfort. We can't give him any tylenol or other pain killers as they contain sugars and carbs which his diet strictly prohibits. Even certain sun screens, lotions and shampoos are prohibited!
He hasn't reached any milestones yet but we work everyday with him and he has two Occupational Therapists come once a week.
Some days he can hold his head up for a few minutes at a time!
He can't sit up, roll over, smile, or look at us yet... but these are our goals.
20 comments:
HAPPY BIRTHDAY JETTY! Give Jetty a BIG hug for me.
Lots of Love, Lois
Happy 1st Birthday Jetty!! You are a special little boy! And a super cute one at that!
Love,
Cousins Kimberly, Garrett and Olivia Magaha
Looking great Jetty!!! What a handsome boy!
Happy birthday Jetty!! See ya on Sunday little buddy
Happy Birthday, Jetty-Baby!!!
Can't wait to see you!! You are a tough dude!! ......with incredible parents!! Love you all!
Happy 1st Birthday Jetty! And Happy 1st year of parent hood mom and dad. You all DID IT!!!! Love , Tasha and the gang
Happy Happy Birthday Jetty! Way to go Jamie and Creg! We look forward to many more trips around the sun for Jetty!
Love,
Erin and Richard
HAPPY HAPPY HAPPY BIRTHDAY, JETTY!!!!!! He looks great! Thank you for finally updating the blog...I've been checking every day :)
Here's to many more birthdays for sweet Jetty! And Jamie, I love the baby bump - you look awesome!
Thinking of you guys always,
Kari
(and Karim and Jay send their love, too!)
Jetty, Happy 1st Birthday!
Happy 1st Birthday Jetty!!! I am so glad to hear the update and I hope you got lots of special presents for your 1st birthday!
Keep up the great parenting Creg and Jamie and congrats on the new baby bump!
Oh Happy Day! Happy Birthday Jetty! You guys are such strong and amazing parents. You are truly an inspiration!
Keep truckin' Jetty and you'll be hitting those milestones before you know it!
Chris, Greg and the boys
Happy Birthday Jetty- you are one amazing kid! Your parents are very lucky to have you in their lives. You are an amazing family and I admire your strength.
Love,
Becky Bozarth
HAPPY BIRTHDAY JETTY! Great news for your family and what a milestone! The whole family looks great and I love seeing your updates for Jetty. He's quite a little miracle and he couldn't have two better parents or families.
Keep the good news coming - Laurie (Lauren's old friend)
Happy Birthday Jetty! We are sorry we couldn't join you on your special day but know we think of you all the time and are so proud of you and your family!!!! And congratulations on your new shape Jamie!!! Looking forward to more comments from Jetty on that too!
HAPPPY BIRHTDAY JETTY!!!! I am so happy for you guys! :)
Lovin the new shape Jamie :)
See you guys soon.
x0x0- Yetter
Happy Birthday to Jetty! It was great to see you guys and Jetty a couple of weeks ago, you all look great. Your strength over the past year has truly been an inspiration and a lesson in never taking the smallest things for granted. Jetty couldn't be luckier to have such positive or more optimistic family.
Stacey (Davis) Smith
Happy Birthday Jetty!! We love your new ride, it looks like fun :)
All the best, Dave and Andy
happy 1st Birthday Jetty!!! And Congrats jamie and creg on the new addition to come!!!!
Aww what a great update! Happy Birthday, Jetty! I'm sorry I missed your birthday- but I sent Uncle Karl in his ugly wife beater t-shirt so you could make fun of him!
xo-
Erin Z.
Thank you so much for keeping us all updated.
Happy Birthday Jetty!
Everyone is so proud of you. I hope your keto diet, nurses, parents, family, and friends help you to achieve your goals.
Erica
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