

His seizures are steady but under control for the most part. He is almost 11 lbs and is still gaining and losing weight so that is our current challenge.
December is full of appointments (GI at Hopkins, Neuro at Hopkins, and several pediatrician appointments for his RSV vaccine and other standard check-ups). His weekly visitors are Physical Therapists, Occupational Therapists, Cranial Sacral Therapist and Hospice. Jetty has a nurse stay with him during the week and another nurse who comes 4 nights a week. That has been a big help.
Every day is different with Jetty and we are thankful for having such a strong and amazing Son.

4 comments:
Awww...Jetty you're so cute! We've been thinking about you. And hoping that you had a nice Thanksgiving. So happy to hear that you did!
26 days til Christmas!! Santa's watching...
Dear Mom and Dad -
I am thankful that God gave me such wonderful parents, AMAZING and STRONG. Thanks for your love!
~ Jetty ~
For God is not unjust. He will not forget how hard you have worked for him and how you have shown your love to him by caring for others, as you still do. Our great desire is that you will keep on loving others as long as life lasts, in order to make certain that what you hope for will come true. Hebrews 6:10-11
Where is Jetty. LOVE, MACKENZIE
Jetty, You are quite the ladies man. every picture has you surrounded by ladies of all ages. It must be the smile
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