Welcome to Jetty's Blog. Jetty was born on June 18th 2009 at Johns Hopkins Hospital. He spent the first month in the NICU before arriving to Chestertown. The purpose of this Blog is to update everyone who wish to know Jetty's status and latest updates. Jetty has good days and bad but we continue to take one day at a time.
6 comments:
I look at these wonderful pictures of your beautiful baby and I can feel the love that surrounds him. I can't explain it. It has to make him warm and fuzzy.. love to you all....Judy & Charlie
Happy 3 weeks Jetty!!! You are adorable! xoxo the griebs
Oh my gosh, his little face is so cute. I just want to kiss him and nibble on his nose. Happy Three Weeks Jetty!!
Love and hugs and kisses,
Erica
Look at you all snuggled up to mommy. Very cute Jamie!!!
~Sarah~
We fall more in love with him everyday! What a cutie pie!
-Jenn & Ryan
Hi, I was shown your blog by a friend who thought I could relate to you guys and possibly offer some insight. I'm the mom of a special little girl who is now 4 1/2 years old. She's had seizures since she was 4 1/2 months old. We have been through several anti-seizure medications and the ketogenic diet. Unfortunately, the diet didn't work in our case but I know many people who it's been a great blessing to. I still have my scale and many great books and lots of information on the diet that I'd be willing to share with you. Our daughter walks and looks 'typical' but has many neurological issues and doesn't talk. We've been told she may never talk but we still try since she does make many vocaliztions and on occasion we hear a word or two. We go back and forth to Hopkins quite frequently ourselves as well as Kennedy Krieger. We are very familiar with the neurology department at Hopkins and have a great neurologist there. We live in Chestertown as well. I know you've had lots of offers similar but if you ever need to talk/vent or anything feel free to contact me. For now I'll give you my email and if you want to talk via phone or in person later then that will be fine too. My email is spraybunch@atlanticbb.net. I just want to add that I can share information on local resources and support groups etc that you may be interested in. Also, I have resources on setting up a care notebook (that has proven invaluable to me) and much more. I've been to many classes some even on advocacy for special needs children. I'll be more than willing to set you up with the appropiate people for help in any way you may need. I know it's a long hard journey filled with lots of ups and downs and many tears but it's a rewarding one too. Our little girl is the light of our lives and we wouldn't change her for the world, though I'd give anything to hear her say mommy, but you know what I mean. She has a carepage that I'd be willing to share with you as well if you'd like though I didn't start it at the begining of our journey and only recently have shared more about it because I found it difficult to open up at first about it all. Anyways, so as I don't write a book I'll end this now and say feel free to contact me anytime at all.
Kelly
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