Merry Christmas!

We are hosting Thanksgiving this year because Daddy is to lazy to travel. Since we are expecting 25 people he had a tent put up on the back of the house which is where we will be eating. I can't wait for some good stuffing and gravy which is one of my favorites... and of course the pumpkin pie!

Diane, my hospice nurse, came to see me today because I haven't been doing really well. I can barely open my eyes and am needing a lot of oxygen support. She seems to think its neurologic and nothing viral or bacterial. Mommy is going to cut back on some of my seizure meds to see if that gives me some more energy. I am too tired to even cough or sneeze, which makes it harder to breathe. I also have been very cold lately. My temperature won't even register on a thermometer even after heated blankets, fireplace, and snuggling with Daddy under blankets.  Poor Daddy gets all hot and sweaty and I stay cold. My darn thermostat is broken and hopefully it starts working here soon. Mommy has me wearing a warm hat all the time now and it messes up my hair.
Happy Thanksgiving everyone. Hopefull my next post isn't a video of daddy catching himself on fire while deep-frying a turkey!

 

Hi everyone. I have had a good fall so far. We went to Milburn Orchards and I got to watch Clay be silly with the animals and on the rides. Halloween was a good time too. Daddy and Mommy took me trick or treating in the golfcart. It was very cold but worth it! We survived Hurricane Sandy without much damage. Daddy borrowed our neighbor's generator so my oxygen machine could still run when we lost electricity... which happens in every storm.
My breathing is still weak and I have trouble with congestion. My seizures however have been excellent! We have a fun Thanksgiving planned for this year with lots of family coming to our house. I can't wait and it's so nice not having to travel... Those oxygen tanks get heavy and Olive likes to tug on my cord in the car. I hope everyone is having as nice a Fall as I am.

Trying on my mask to see if it fit.

 

My Halloween ride.

 

I am a green super hero. You can't really see it very clear but I am wearing a green bow tie and cape.

 

I wish Daddy would get a bigger truck. I need some separation from these two...

 

Hanging out with Mommy on the couch after Clay and Olive went to bed. This is my favorite time of the day because I get all the attention!

 

 

Milburn Orchards, Elkton MD.

 

 

Playing in the leaves!

 

 

Snoozin

 

Story time with Daddy.

Listening to my evening jams

I have been doing VERY well here recently. My seizures are minimal (10-15 a day) and I am very comfortable. I sleep a lot though which isn't very exciting. And when I am awake, sometimes I just "play possum" like in that Geico commercial to keep from drawing Clay and Olive's attention!
My breathing is still good thanks to the oxygen support but the tube irritates my ears and neck and is also an attractive toy for Olive to tug on... another reason I play possum. The summer is almost over which I am excited about because it is tough for me to get outside in this heat that we have had. I get overheated easily in the summer (Daddy says my thermostat is broken) and I get very cold in the winter so the fall is a perfect time of year for me to enjoy the outdoors. Not to mention those skeeters that eat me up. I am a sitting duck out there for them. Clay gets eaten alive every single night because he is a dum dum who likes to run around in the yard with his shirt off and doesn't seem to care.
Thanks for checking in on me and bye bye for now!

Trying to get all these squirts to pose for a picture with me was impossible! I can always count on Olive but these other clowns are a different story.



Aunt Nancy came to visit me!

Bethany Beach week!

Jetty turns 3!

I slept through my entire party but I hear it was a great time. A bunch of family came to see me with presents, Daddy grilled burgers and hot dogs, Poppop brought crabs, and Mommy made me a cake. Maybe next year they will wake me up!

Daddy took me swimming today to cool off. I've been very tired lately so it was nice to take a refreshing dip. I'm gearing up for next weekend as that is when I turn three!

We went out for dinner to celebrate Grandma's birthday!

I was hesitant at first... thought Clay was driving this thing!

I'm feeling great! Been very sleepy but feeling so much better. Mommy had a great Mothers Day thanks to the herb garden I made her.
I am a month away from my 3rd birthday and I am really looking forward to it!

Daddy took me, Clay and Olive to the dump this weekend. I was excited to get out of the house but... the DUMP?... Really Daddy?

Swinging

Olive let me sit in her swing. I even got a break from my oxygen and did ok.

I am doing GREAT! My seizures are at an all-time low. I am tired a lot and still need oxygen all the time but am happy to be home with my family and doing well.
Mommy wants to send pictures of me to the hospital to show them how well I am doing. Thank you to everyone who has been thinking and praying for me. I know that has a lot to do with why I am doing so well.

I've been doing well the last few days. I really enjoyed the boat ride but got some sunburn on my face... Thanks Daddy.

Went to my cousin Brenna's birthday party Monday night. I slept in my stroller the whole time but heard it was a good time.

I received a package today all the way from Montana! The Seacats (dear friends of mine) sent me this heart stone that they find on the river banks.

I'm still hanging in there. My seizures aren't too bad and my nose is healing nicely. My breathing is the same but this oxygen machine really helps. I really like having food in my belly again rather then getting it through IVs.

Went on a boat ride this afternoon! The weather was great and I was feeling good too! I require oxygen all the time but my seizures haven't been bad at all.

Jetty's Baptism- 4/28/12- Fleetwood Residence

So today I was baptized by a very nice gentleman named Reverend Vance. I am not sure what a Baptism is but it consisted of my family, great food, and a wet forehead.

That brother of mine is always a jokester.