Random Pictures

Now I know what Barney's talking about... this is nice!

Take my word for it, these are better than pillows.

Jetty has his very own stocking that Mrs. Keen made for him before he was born. It saddens me that she never got to meet him. It saddens me more that Jetty never got to meet her. Since she passed away before Jetty was born, her daughter in law finished her work by stiching his name on it. (Not sure if stiching is the proper word).
Jetty is very excited about Christmas because he has been a good boy this year and you know what that means! ...(He has lots of Grandparents that can't wait to spoil him).

We apologize for not updating the Blog in a while. As for many of you, it has been a hectic couple of weeks with the Holidays approaching and the blizzard that came through.
Jetty has had a tough time here lately and didn't get to enjoy the snow. He had his feeding tube taken out last week and replaced with a "button". The procedure for removing the old tube is not quite as sophisticated as I had thought it would be. One Doctor holds him down and the other one grabs the tube and yanks. Jamie had to leave the room before hand after they told her how it was done. He handled it well but then again he is a tough little guy.
He lost almost 1lb 2 weeks ago so we are now back on EleCare formula. He is up to 12.3 lbs now which is still WAY under the normal weight of a typical 6 month old.
He isn't sleeping much because of his seizures. His seizure medicines are supposed to make him sleepy but they don't so obviously we need to make a change. The difficult part is that he is already on 3 different drugs and they don't want to add a 4th.

Below, Jetty finally dosed off after being a wake for 18 hours.

Erin and Jennie came to see me.

I'm pulling her finger but nothing is happening! What gives??

Christmas Tree

Putting the finishing touches on the tree.

Finally my first tree is complete.

Now its time for a well deserved nap!

I look good in my carseat.

Deer Season

Mommy is so silly. She aligned Daddy's deer mount up perfectly without him knowing. And I thought I looked dumb!

Some things we are thankful for...

Jetty had a pretty good Thanksgiving. He spent it with a lot of family and friends.

His seizures are steady but under control for the most part. He is almost 11 lbs and is still gaining and losing weight so that is our current challenge.

December is full of appointments (GI at Hopkins, Neuro at Hopkins, and several pediatrician appointments for his RSV vaccine and other standard check-ups). His weekly visitors are Physical Therapists, Occupational Therapists, Cranial Sacral Therapist and Hospice. Jetty has a nurse stay with him during the week and another nurse who comes 4 nights a week. That has been a big help.

Every day is different with Jetty and we are thankful for having such a strong and amazing Son.

Aunts: Debbie, Kathy and Lauren

Tyler, Tracy and Aunts Debbie, Kathy and Lauren

I am not going to smile until I get some of that Pumpkin Pie!

Now we're talkin! I hate to eat and run but I have places to go and people to see.

Uncle Ed, Aunt Deana and Aunt Allison

We are two hard working men who sometimes need a good nap at the end of the day. Or we ate too much dinner and need to sleep it off.

Getting a quick nap in before game time.

Who's your daddy Carson Palmer!!! Thats what I'm talking about!

Touchdown Ravens! Heeeeeeey..... Hooooooo!




We lost. I hate the Ravens

Mommy and Daddy like to sneak pictures of each other sleeping.

Wake up Mommy, we have a long day of football. I am going to need chili, wings, chips, dip, beer... and that should get me through the first game.

The Chili isn't cooking itself!

This bed isn't big enough for the 3 of us. One of you two needs to get out.

Halloween Pictures

Of all the halloween costumes out there, they dress me as Happy Feet.

There are more pictures of me to post but Daddy left his camera at a Halloween party that he attended. Mommy let him know how stupid he is!

His first smile picture!