Monday, July 20, 2009
Sunday, July 19, 2009
Friday, July 17, 2009
Monday, July 13, 2009


Jetty is scheduled to get his P.E.G. Tube put in on Wednesday morning. After that, he will have nothing hooked to his face. The are starting a third medicine today. Hopefully the seizures will be maintained/controlled a little bit better than they are now so that we can come home soon! The Doctors are starting to talk about that!Sunday, July 12, 2009
While Jamie was just changing Jetty's diaper, Jetty decided to "destroy" his new outfit, sheets, and cause a serious mess to the crib and floor. Mommy couldn't control it because he was shooting both of his guns. Daddy's blackberry was almost an innocent bistander since mommy left it sitting in the crib. - Sorry Scott... do we have insurance on them?
Sorry folks, Mommy wouldn't let Daddy post a picture of the crime scene.
Sorry folks, Mommy wouldn't let Daddy post a picture of the crime scene.
Sunday Morning




This weekend has been pretty uneventful. That is a good thing! He has his "episodes" which normally last about 5-8 minutes. Then he is very sleepy. Switching from Lard to Breastmilk is making his tone and color much better. His stomach hasn't quite made the adjustment yet as Daddy is getting all of those "loose diapers".
Jetty enjoys his baths. He has had 3 now and each time he just seems to love it. He is going to love the water when he gets home. Hey Grandparents- get your pools ready for Jetty when he comes home!
He has not needed any oxygen for several days now and all of his vital signs are stable and normal. We met with Gastroenterologists on Friday and they examined Jetty to determine if he would be able to handle a PEG tube which is endoscopically (not surgically according to Jamie) placed in his stomach. He shows no signs of reflux which would be their main concern.
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Thats a little better but ease up on the grip!












